So this post is mostly about waiting. Again. Thrilling, I know. Ended up flying back into London a little bit early for personal reasons, so now I am waiting in London on my own. Which makes things feel both normal and bizarre, seeing that I am out of the loop. It scares me how much out of the loop a person can be, as illustrated by my brother last night. We were chatting and he said, "I don't know where I need to pack for or where I will be next week. After all, they could say that he's doing really well and to come back in a month for more chemo and then he will just bugger off to thailand". Stunned, I said "Um, no, there is less than an iota of a chance that Thailand is anywhere in the realm of possibility". It's weird, because he knows much more about stuff like the Whipple Procedure (the surgery that is sometimes done on pancreatic tumours) but didn't seem to realise that if you leave this tumour alone for a month, it could treble in size and kill my father.
My grandmother is recovering from her back injury and her life is almost back to normal. However, we have a new war injury, namely my mother, who fell off the pavement and hit her head and wrist. She needed stitches in her forehead and is wearing a sling. God knows if it's broken, but she will get it checked out in Houston. I feel irrationally guilty, as if, if I had been there, this would not have happened. I don't need to be told it's not my fault, but sometimes you feel it anyway.
The reason updates have been thin on the ground is that nothing much has happened. We are all just waiting. It's been almost two weeks since my dad's last chemo. He is feeling good enough to walk to work (I walked with him and it takes about 40 mins) and stay at work all day. He also felt well enough to travel, alone, to an overnight meeting in Bucharest and came back tired but chirpy. It's all too good to be true. I feel like we are setting ourselves up for a fall, because it can't possibly be SO GOOD. I am worried that, come the 1st December, we will find out that the cancer has spread everywhere and that he may feel well, but he has 2 months, tops.
I know he has had the best possible care (most of the time) but, after all, he was staged as 4, and that's not a funny staging. It would be insane to allow yourself to believe that just the chemo has done the trick, right? Chemo doesn't do that with the pancreas. But maybe I have heard just the horror stories. However, in the UK in 2005, there were 7,632 cases of Pancreatic Cancer. There were also 7,288 deaths from Pancreatic Cancer. And my father is flying off to Romania. What? I mean, WHAT?!
Showing posts with label stage 4. Show all posts
Showing posts with label stage 4. Show all posts
Friday, 27 November 2009
Wednesday, 30 September 2009
There's a spot
My brother called. I have been waiting up for him. He has been in the meeting with my parents and the oncologist for the last 2 1/2 hours or so. He had to leave early to catch a plane home.
So, it's pretty grim. My father had an MRI yesterday "just to check" that there were no spots on his liver, and they found one. One. Usually there are loads, which makes it officially stage 4, inoperable and we are fucked. With one, they can't tell yet. PET scan tomorrow to confirm, if they even can confirm anything. So it might be Stage 4, or not. And the relevant question is now "It took them this long to figure it out!?"
My brother says that my parents don't believe that the spot is cancerous, even though the doctor says that there is a 90% chance that it is. However, so far, this entire thing has been atypical, and not in a good way. If it's stage 4, they won't operate, because it could "anger" the cancer and make it much more aggresive. Personally, I don't care about making it angry. Frankly, I'm angry.
They will be staying in Houston for the next two weeks, in any case, because they want to start him on chemo early next week. I am wondering what the damn point is, if they don't want to operate on it.
So we may well be flying out of here. At least I will have a better internet connection, as I am poaching internet from the flat 3 floors beneath us at the moment.
Now what? My brother says that they will probably be unwilling to operate for at least 8 months. So, as our doctor friend claims, does that mean that we are supposed to go back to normal, just live our lives? Am I supposed to go back to London, fiddle around in the theatre and hope for the best? Or could I possibly be squandering any time that I have remaining with my father? Is this not the time that people later wish that they had had with their parents? I have many things that are unresolved with my father and frankly, I am not entirely sure that we want to resolve them now. It's too soon. He's supposed to have 10 months to decide whether to come to my wedding, and then several more years to figure out his relationship to any potential children we might have. We have never talked about god, or about the damned money, or about what the fuck I am going to do with my life. And I'm not sure we can do it all now.
So now what? Does everything stop while we hold our breaths and pray in vain? Or do I trust that tomorrow will be another day and pretend that today is normal?
Fuck normal.
So, it's pretty grim. My father had an MRI yesterday "just to check" that there were no spots on his liver, and they found one. One. Usually there are loads, which makes it officially stage 4, inoperable and we are fucked. With one, they can't tell yet. PET scan tomorrow to confirm, if they even can confirm anything. So it might be Stage 4, or not. And the relevant question is now "It took them this long to figure it out!?"
My brother says that my parents don't believe that the spot is cancerous, even though the doctor says that there is a 90% chance that it is. However, so far, this entire thing has been atypical, and not in a good way. If it's stage 4, they won't operate, because it could "anger" the cancer and make it much more aggresive. Personally, I don't care about making it angry. Frankly, I'm angry.
They will be staying in Houston for the next two weeks, in any case, because they want to start him on chemo early next week. I am wondering what the damn point is, if they don't want to operate on it.
So we may well be flying out of here. At least I will have a better internet connection, as I am poaching internet from the flat 3 floors beneath us at the moment.
Now what? My brother says that they will probably be unwilling to operate for at least 8 months. So, as our doctor friend claims, does that mean that we are supposed to go back to normal, just live our lives? Am I supposed to go back to London, fiddle around in the theatre and hope for the best? Or could I possibly be squandering any time that I have remaining with my father? Is this not the time that people later wish that they had had with their parents? I have many things that are unresolved with my father and frankly, I am not entirely sure that we want to resolve them now. It's too soon. He's supposed to have 10 months to decide whether to come to my wedding, and then several more years to figure out his relationship to any potential children we might have. We have never talked about god, or about the damned money, or about what the fuck I am going to do with my life. And I'm not sure we can do it all now.
So now what? Does everything stop while we hold our breaths and pray in vain? Or do I trust that tomorrow will be another day and pretend that today is normal?
Fuck normal.
Labels:
breaking news,
diagnosis,
stage 4,
treatment options
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